I got my letter of determination from the Social Security Administration today. I've been denied disability ( Read more... )

Today, I did some cleaning about the house. I'm realizing more and more how hard it is to judge the amount I should limit myself to. I can work and feel no severe pain, nothing getting particularly worse than the levels of pain I started out with... and then, a couple of hours later, it all hits. I was fine and then BAM, my legs were absolutely ( Read more... )

Nix what I said about being better than yesterday. Make that worse.


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So, my brother-in-law injured himself at work (tree cutting service) recently and damn near sliced his thumb off. He had to have surgery, but thankfully he was not as fucked up as they thought. They were planning on replacing part of his... I forget if it was tendon or ligament, by taking it from his ankle, but they didn't need to do so after all ( Read more... )

Yesterday I decided that I was going to floss, because my hands were actually feeling well enough to handle it. Big mistake. I didn't think about my jaw, which hurts every day. I don't exactly give it any rest, as I'm talking (a lot, as I'm sure Josh would tell you) and eating every day. So, in retrospect, forcing my jaw wide open for several ( Read more... )

I really want to snap out of this insomnia shit and get back into a schedule where I'm actually awake by a good time in the morning. Or even just up all night, but awake in the morning regardless! I haven't been able to sit out on the balcony and enjoy it for a while. It's been too damn hot to do it any later in the day ( Read more... )

Dammit! I looked at the kitchen today, which was already piling up with dirty dishes, and still covered with stuff that hasn't found a spot to go. I couldn't take it, and I started to clean. Did a load of dishes in the teeeeny tiny dishwasher, washed the counter and sink, put some stuff away, threw out some garbage. This is all only on one side of ( Read more... )

This is from one of my fellow EDSers, and I would be absolutely thrilled if anyone would help out. You don't need to have EDS to sign. Help bring this rare degenerative disorder to light ( Read more... )

Pushed myself way too hard today. We need to get the place cleaned up and everything ready to move at the end of the month, and even though I was already in a lot of pain, I couldn't help but to go around and get some stuff done. I'm always in pain, so it seemed sort of hopeless, and I'm just feeling loads of anxiety about getting everything ready ( Read more... )

Sorry, haven't had internet at the apartment lately, and that's why I haven't been keeping up with everyone! And on the 20th, Adam will be taking the laptop, so we won't have 'net at all. At least till we hopefully manage to get to NC! We're sitting at Big Boy's and using their wireless interwebs right now. On my sixth mug of coffee within three ( Read more... )